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Psycho-oncology (aka psychosocial oncology) refers to the psychological aspects of cancer care. For healthcare professionals this essentially means finding the best ways to detect, measure and treat psychological distress. 

For patients and families this usually means accessing the most appropriate forms of help for emotional disorders. This site was designed to offer some useful resources that we have developed locally in Leicester (UK). 

Please be aware we cannot offer individual clinical advice via the website. Trouble viewing this page? Try mozilla firefox or google chrome

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New 

The 15th World Congress of Psycho-oncology was held in Rotterdam and was a tremendous success. Here are some slides.

[New!] Invited Talk: Screening for distress: IPOS Debate

[New!] We presented more info on CancerStories - an innovative peer support programme

[Recent] Overview of CancerStories - a slide based introduction

 

Headlines 

[New!] CancerStories a slide based introduction

[Hot!]  MD Thesis with permission from University of Leicester. Implementation of Screening for Distress in Cancer Settings

[Hot!]  New paper in Lancet Oncology on Depression & anxiety in long-term cancer survivors: see video blog now in NY times

[Hot]  A new innovative free to use pair of scales is launched for clinicians and patients to screen for generalized anxiety disorder, following the rules of DSM-IV & DSM5 "the GA-DSM". Go to www.anxietyscale.co.uk to preview or download

 

Videos 

Free Video Podcasts [New!]

Podcast lecture: "Introduction to Psycho-oncology" Educational Podcast: "What is Clinical Depression?" 
Podcast lecture: "Screening for Distress: Does It Work?" Educational Podcast: "Exercise and Depression
Podcast lecture: "Does mental health influence cancer care?" + slides Educational Podcast: "Smoking and mental illness"
Podcast lecture: "Are we failing our patients medically"    + slides
Podcast patient lecture: "Tips on living with a brain tumour"    + slides ee  online channel

 

Free Paper on Compliance and Non-attendance  [Free]

We have two papers in the top50 papers in Adv Psychiatric Treatment. They seem to be free to view. Why don't patients take their medicine? Why don't patients attend their appointments? 

 

Recent

15th World Congress of Psycho-oncology

 [New!]  Conference abstract booklet: 15th IPOS Abstract free download from Wiley => click

[New!] Invited Talk: Screening for distress: IPOS Debate

[New!] We presented more info on CancerStories - an innovative peer support programme

[Recent] Overview of CancerStories - a slide based introduction

Paper: Screening for Distress

We have a new paper in Acta Oncologica on Screening for cancer-related distress: When is implementation successful and when is it unsuccessful? Email if link dead

 

Medication Prescribing Inequalities in Mental Health

We have a new paper in Br J Psychiatry on medication prescribing inequalities. This is featured on BBC news website here

 

Clinical Utility Index [Hot!] 

We have just launched an interactive online website to help anyone wanting to work out & interpret diagnostic tests for accuracy and clinical utility.

 

The website is www.clinicalutility.co.uk    You can use the main calculator here: excel xls or see a (basic) google docs version here.

 

Educational Podcasts [revised!]

A collection of more than 40 audio and video Podcasts on psycho-oncology topics collected from worldwide sources....most free of charge.

 

Courses [new]

A short list of courses in psycho-oncology available, worldwide.

 

We are in the Top10 Most Downloaded & Cited  [Free]

Our team has two papers in the Top10 most accessed and Top10 most downloaded articles in Wiley's journal "Psycho-oncology" for 2011. As a reward Wiley are made them both available free! They are "Screening for distress and depression in cancer settings: 10 lessons from 40 years of primary-care research" and "Desire for psychological support in cancer patients with depression or distress: validation of a simple help question"

 

JCO Special issue: Caring for the Whole Patient: The Science of Psychosocial Care [Free]

We have been invited to participate in this special issue of Journal of Clinical Oncology just released as an early view here. All articles are currently freely available including our paper "Screening for Distress and Unmet Needs in Patients With Cancer: Review and Recommendations" written with the invaluable input of Linda Carlson and Amy Waller.  Be sure to look at the extensive data supplement we prepared for this piece.

 

Cancer Stories - Update       

We are busy designing a new website for patients detailing their cancer experience. This will take the form of video diaries and should be ready in mid 2012. East Midlands Cancer Network is actively supporting the pilot. The initial focus will be on Leicestershire patients but will be free to view for anyone interested.

 

Patients have the chance to recount their story over 30mins and receive a complementary dvd copy. Handout for patients here Here is a quick overview slideset

 

 

Everything Else

Metabolic Side Effects of Atypical Antipsychotics

In support of BBC R4's "all in the mind" re metabolic monitoring for those taking antipsychotics drugs, see our patient resources here and slideshow here or mirror here (google docs)

 

Emotion Thermometer [Updated]

This section describes our newly developed refinement and enhancement to the well known "Distress Thermometer" designed for self-completion with or without health professionals.

The ET has been validated in cancer, cardiovascular and neurological settings.

 

[New] > > Oct 2012 sees the launch of an Italian translation of the ET; thanks to Chiara Acquati, at University of Louisville

[New] > > June 2012 sees the launch of a new modular set of ET tools, including a Hindi translation thanks to Priya Khanna and Abhijit Dam

[New] > > June 2012 sees the launch of the stand alone Depression thermometer (DepT) here

 

Local Information

A brief section of resources for those interested in our local service in Leicester (eg referral forms). Includes new information on our network screening programme (link) and our chemotherapy screening programme (link)

=>We have a new flyer to explain who we are, aimed at new patients. Local staff can download the new East Midland Distress Thermometer screen (extract)

 

Local Blog

This is an experimental blog for misc non-medical issues. Hopefully this will allow replies and simple updates.

 

Academic Blog

Blog about latest research updates, workshops and in press papers here

 

=> Oct Blog     Which symptoms are indicative of depression in epilepsy?

=> Sept Blog   Confirmatory bias, can we all suffer from a loss of objectivity?

=> Aug Blog    How Many Cancer Patients Want Psychosocial Help? - Meta-analysis

=> July Blog    Real World Errors When Clinicians Try to Spot Alcohol Problems

 

NHS (and Misc Difficult to File)

Top100 papers in psychiatry here and Organizational chart of NHS staffing here. 10 year total research output of LPT here

 

Self-Help and Patient Narratives [revised!]

We have a new series of free self-help links for anxiety and depression.

We also list a comprehensive directory of therapeutic patient narratives specifically for cancer courtesy of www.healthtalkonline.org.

Also there is an online self-assessment for depression and anxiety that may be useful.

We are busy designing a new website for patients detailing their cancer experience.

 

Free Slides 

As a thank you for making us Top 5 in Google psycho-oncology searches, here are several free useful Powerpoint slide links:

(links are or have been publically listed online for free, but may be temporarily held here to ensure fast download)

 

About IPOS (Holland)  QoL measurement (Wells)   Depression (Hosker)   
Depression in Cancer (Coyne)  Support for Kidney Ca (Bialey)  Outcomes (Dueck)   
Palliative Psycho-oncology (Holland)  Diagnosing depression (Sullivan)   Cognition (Bernstein)     
Psycho-oncology Overview (Walsh) Psychological aspects of cancer (Sherr)  Delirium (Caraceni) 

  

 

Embedded Slide Shows

A back collection of our presentations (powerpoint/pdf=>flash converted) on recent topics of interest. 

 

Free PDF Searches and highlights [Updated Mar12]

Our selected highlights of world psycho-oncology literature presented in free full text PDF. 

Now augmented with pre-searched items in the following categories: distress | depression | screening | delirium | communication | suicide | fatigue | survivorship  [more soon]

See also excellent free issues of Acta Oncologica, Psycho-oncology and JCO (Apr 2012) on psychosocial oncology

 

Misc Questionnaires and Tools

Here we list generic tools and some of the tools adapted for cancer care such as the Hospital Depression and Anxiety Scale (simplified) and the Illness Perception Questionnaire, copyright permitting.

Interested in validated tools? Download a spreadsheet of scales that have been validated in cancer settings [New]

 

Patient Information

A list of resources for patients struggling with cancer as well as new metabolic/weight resources for those with mental health complaints in general

 

PACT

This is a new resource for patients and families struggling with the emotional complications of cancer, currently available locally. We hope to trial this in 2012.

 

Current Research

This section describes some of our research in this area, particularly in relation to screening and case-finding.

We are always interested in collaborative research in these fields, if you are interested please get in touch.

 

Publications

Here is a list of major papers published from our department with links. For the latest peer reviewed published papers try this PubMed Autosearch

Here is a spreadsheet of all publications, by category (eg paper, poster, editorial)

Quick search on pubmed of LPT Leicester research by any author? click pubmed

 

Recent book on "Screening for Depression in Clinical Practice An Evidence-Based Guide" is out in US from OUP [Free preview on GoogleBooks or Barnes&Noble]

 

News

A selection of current news items related to cancer, survivorship and psycho-oncology; sorry, needs updating!

 

 

For Reference

Discussion Board

Join free discussions on psycho-oncology aimed at health professionals via facebook (no subscription needed) or at www.jiscmail.ac.uk/psycho-oncology (subscription required for email access)

 

Conferences

A summary of recent local educational conferences and summary of national conferences. We also have an index of previous IPOS conference abstracts here [New]

 

Evidence

A collection of evidence supporting the case for psycho-oncology services nationally and internationally. Download a large spreadsheet of all psychosocial trials 1979-2005 (from Moyer et al 2009) [New]

 

Guidelines

A summary of most UK based evidence based medicine guidelines relevant to mental health

 

Literature Searches [Updated]

A convenient way to keep up-to-date with the world psycho-oncology literature....use our searches & let us do the hard work!

 

Survey

We have a survey on screening for distress in cancer settings. This is your chance to give you opinion (positive or negative) on the merits of screening for distress in cancer settings. Thanks to those 25+ individuals who have already responded! Results will be immediately shown to anyone who completes the survey and results posted when we reach 100 responses.

 

 

 

Social Media

 

 

 

 

Our Survey

10 questions about this site and online psycho-oncology resources in general....thanks for your feedback so far

Whats New on site? When
Twitter feed app  Mar14
New podcasts  Feb14
CancerStories slides  Aug13
MD thesis Jul13
XLS of publications Jun13
Screening for distress pdf Jan13
Anxiety Scale Jan13
Screening QQ Dec12
Utility Calculator Nov12
Italian ET Oct12
In-house podcasts Oct12
Alcohol pages Aug12
Free slides July12
Podcast links July12
Hindi ET June12
Depression Thermometer June12
Top10 Mar12
Cancer stories Jan12
Free searches Feb11
Lancet Paper Jan11
Twitter Nov10
Blog post Feb11
New slides June10
New research papers May10
Personal Narratives Feb10
How to: "Implement automated screening" guide Sept09

 

 

 

Last update Mar 2014

 

          

 

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 Disclaimer: We  maintain this website in our own time and are hosted independently from our employers.

                    We cannot offer clinical advice on this site. Local Leicestershire patients should contact us through their GP or related healthcare professional.

                    www.psycho-oncology.info  - Psycho-oncology (UK) Information & Help (c) 2013 Alex J Mitchell